Mobility aids3/2/2023 ![]() After all, having an invisible disability can be a strange thing. I’ve experienced a lot of conflicting feelings about mobility aids throughout my life. But there was an incredibly long process of grief and pain and confusion that went on for many years before I reached the point of acceptance which changed the way I view both myself and my mobility aids. And it’s probably one of the best things I’ve ever done. Even when I was told that I was too stubborn to let myself ‘end up’ in a chair, I was, as I used to say a lot, in a battle for supremacy with my body and it was winning.įast forward another 9 years, and here I am. Unfortunately, the medical care that was offered to me was severely lacking, and no matter how hard I tried, things kept getting worse. Something we didn’t even know to look for. Not only did I have a name for why my body was so ‘weird’, I finally had validation that the way I felt was actually rooted in something real. ![]() ![]() When I was diagnosed with Ehlers-Danlos Syndrome at 21, I felt a huge sense of relief. I was both the glamorous girl who was pushed around school in a computer chair when my knees gave out, but also the one who was constantly made to feel like she was lazy and trying to get out of stuff by the school nurse whenever I went to see her for yet another subluxation, general pain, or fatigue. I had my first ‘proper’ knee dislocation at 11, and as I got older, my ability to force myself to walk declined year on year. I spent my entire life terrified that I’d ‘end up in a wheelchair’.Īfter all, from 9 years old, I only knew worsening pain. ![]()
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